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Notice to OneMatch Registrants and Consent to Participate

 

Our Commitment
At Canadian Blood Services we are committed to protecting the privacy and security of all personal information in our possession. We do so by following relevant laws and best practices and encourage you to read our privacy policy on our website at www.blood.ca/privacy.

Purpose
Canadian Blood Services manages the OneMatch Stem Cell and Marrow Network which is a national program comprised of the national public cord blood bank and the OneMatch Stem Cell and Marrow Network Registry.

The purpose of the OneMatch Stem Cell and Marrow Network is to recruit healthy, committed volunteer donors for patients in need of stem cell transplants. Registrants' compatibility testing results will be listed on the OneMatch Stem Cell and Marrow Network Registry for the purpose of finding potential matches with patients who require stem cell transplants.

What is Personal Information?
Personal information, which includes personal health information, is information that may be used to identify you. It includes such details as your name, address, date of birth, health status and compatibility testing.

Collection of Your Personal Information
In order for you to participate in OneMatch we will collect personal information about you from your buccal swab as well as your answers to the health screening questionnaire. This information will be put into an electronic database which forms part of Canadian Blood Services OneMatch Stem Cell and Marrow Network, for which the servers are located in Ottawa, Ontario. Because your personal information will be held in Ontario, it may be subject to the privacy laws of Ontario, as well as any privacy laws in your own province. We may also review our records to determine if you have ever donated or attempted to donate blood, or, if you are female and have delivered a baby, if you have donated your baby’s umbilical cord blood through Canadian Blood Services' national public cord blood bank. We need to collect this information about you so that we may determine your eligibility to join OneMatch and to contact you about receiving a buccal swab kit so that you may proceed with your enrolment. 

If it is determined that you are not eligible to participate in OneMatch, or you do not provide a buccal swab, we will not use your personal information to identify you as a potential donor for a patient requiring a transplant.  However, the personal information that we have collected about you up to that time will remain in OneMatch’s database so that we may keep a record of individuals who have attempted to participate in OneMatch.  Information about you that has been entered into One Match’s database, but which does not identify you, may be used for the purpose of managing the OneMatch Stem Cell and Marrow Network, or for statistical purposes.

Collection and Testing of Buccal Swabs
If we determine that you are eligible and you wish to proceed with your enrolment with OneMatch, you will be required to return a buccal swab to Canadian Blood Services where it will be used for compatibility testing. A buccal swab involves brushing your inner cheek with a special swab to collect cells that can be tested for compatibility. The results of the compatibility testing will be entered into OneMatch’s database. We need to collect this personal health information to identify you as a potential donor of stem cells for a patient requiring a stem cell transplant. 

Your buccal swab may be kept indefinitely by Canadian Blood Services to perform further compatibility testing in circumstances where further testing is required. Further compatibility testing may be required to determine if you are a match with a specific patient or if a new compatibility test is identified as being important in the matching process and your buccal swab was not previously tested for this new compatibility test. If at any time OneMatch determines that you are not eligible to participate in OneMatch for any reason, your buccal swab will be discarded.

How do we use Your Personal Information?
We may use your personal information to:

  • Assess your eligibility to donate and retain you as a participant in OneMatch;
  • Protect the safety of blood, blood products and stem cells in the event your responses to the health assessment questionnaire indicate a potential risk;
  • Make our services better and more efficient;
  • Support our education and training activities;
  • Comply with legal and regulatory requirements;
  • Fulfill any other purposes prescribed by law;
  • Advise you regarding Canadian Blood Services' programs and donor events;
  • Contact you about our fundraising activities. If you wish to remove your name from our fundraising contact list, please call 1 888 2 DONATE (1-888-236-6283) and ask for our National Fundraising Office.

Your Personal Information may be Shared With:

  • Canadian transplant centres and international registries. We will only refer to you by using a unique donor number when we disclose information to the transplant program health care providers or registries;
  • The Royal Canadian Mounted Police (RCMP) so they may attempt to locate you through database searches in the event you are identified as a potential donor for a particular patient and Canadian Blood Services has failed to locate you. If the RCMP is unable to locate you, OneMatch will no longer use your personal information to identify you as a potential donor for a patient requiring a stem cell transplant and your buccal swab will be discarded;
  • Accreditation or regulatory bodies provided they agree to keep it confidential; and
  • Others, as authorized or required by law.

It is important that Canadian Blood Services be able to contact you in the case where you are identified as a potential Stem Cell donor for a particular patient. If you change your contact information (i.e. your address or phone number) please let Canadian Blood Services know by following our procedure as outlined in the Change Your Address link on our website at www.blood.ca.

Further Testing
If you are identified as a potential stem cell donor you will be asked to undergo further laboratory testing to determine if you are a suitable donor for a particular patient. This may include testing for blood grouping as well as for hepatitis, syphilis, Acquired Immune Deficiency Syndrome (AIDS), Human T-Lymphotropic Virus (HTLV), West Nile Virus (WNV), and other factors to make sure your donation is as safe as possible. At that time, we will contact you to make arrangements for the collection of blood samples for this additional testing. 

Withdrawing from OneMatch
You may withdraw your consent to participate in OneMatch at any time by contacting Canadian Blood Services at 1 888 2 DONATE (1‑888‑236‑6283). All personal information collected up to the date of your withdrawal will remain in the OneMatch Stem Cell and Marrow Network database, but no further personal information about you will be collected or added to your record. If you withdraw, your personal information will no longer be used to match you with a patient who requires a transplant and your buccal swab will be discarded. 

How to Contact Us
You may contact our Privacy and Access to Information Office for more information about our privacy and access practices, or to request access to or correction of your personal information as follows:

In Writing:
Canadian Blood Services
Privacy and Access to Information Office
1800 Alta Vista Drive
Ottawa, ON K1G 4J5

Websitewww.blood.ca

By phone:
1-613-739-2483
1-877-262-9191 (toll free)

By e-mail:
Privacy Office - privacy@blood.ca
Access to Information Office - ati@blood.ca

If you feel your concerns have not been addressed by Canadian Blood Services you have the right to contact your provincial Privacy Commissioner or Ombudsman.

Consent
I have read and understood the information provided on stem cell donation and consent to participate in Canadian Blood Services’ OneMatch Stem Cell and Marrow Network as a potential stem cell donor. I consent to the collection, use, disclosure and retention of my personal information, including my personal health information, for the purposes outlined above. If eligible, I agree to provide a buccal swab to Canadian Blood Services for compatibility testing. 

I understand that by agreeing to have my personal information entered into the OneMatch Stem Cell and Marrow Network I am not consenting to any medical procedures. If I am matched to a patient and agree to proceed with making a stem cell donation, I will sign an “Intent to Donate” form following an information session with OneMatch staff. Before proceeding with the stem cell donation, I understand that I will have to undergo a comprehensive medical examination and the collection centre medical team will discuss the required consent for medical procedures, including stem cell donation, with me.

I have answered all questions truthfully. I understand that to make a false statement is a serious matter and could harm others.



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